When people ask if I ever have a day without any pain…
By the time wednesday comes…
Pretty much anytime I go out with friends…
Q:I love your blog having a rough night and reading through some of the posts has made me laugh which is really want I need right now :)
Awe! Sorry you are having a rough night! Is it just me, or are nights the flipping worst?
Basically the reason I started this blog was to give me a laugh when I was feeling down. It started as a collection of funny pictures and kind of…escalated. So I’m happy I get to share that with other people now!
Hope tomorrow’s better! Thanks for stopping by! :0)
Q:Hi, I am wondering if you or any of your followers have gotten on this situation before and what u did about it. I basically just got kicked off of campus bc I am sick. I fell on the floor on my way to class from pain. Security protocol is to call 911. The pain is normal for me, as well as falling from pain. They told me that if they see me hunched over in pain agn today they will call 911 and I will be forced to go to the ER. The ER does not help me. How did u make it in scl with fainting?
Well that’s 100% illegal as far as I know. They really really can’t do this unless you are a safety risk to yourself or others. With orthostatic hypotension (or sometimes epilepsy, or cataplexy, etc.) collapsing is a part of life and not dangerous. So they have no right to force you to go to the ER or kick you off of campus. They are creating barriers to education for you because of a disability and that’s SO illegal.
Are you connected with your school’s disability center? I would hope that they would be understanding and can help you out. If not, just keep going higher up until you get people willing to work with you. Unfortunately the ADA isn’t always practiced and I’ve learned to choose my battles. But if someone was preventing me from my education, you can bet I would not let that slide. To me it would be worth the fight.
I didn’t get a whole lot or resistance in school because of collapsing (part of that was because I used a wheelchair a lot of the time). I would freak people out when I blacked out, but I always warned my professor the first day of class and told them not to even bat an eye unless I’m out cold for several minutes. I would also try to do my collapsing in hidden places, but that was just a personal preference because I was in classes with pre-med students with savior complexes. :0P A few times professors did try to prevent me from doing things because they deemed it unsafe for me. Sometimes I’d let it go and sometimes I’d politely fight them on it. One time what one professor deemed was unsafe for me was being in the school building. He said I made him nervous. I said he could suck it up and deal with it. (Ok, maybe I phrased it a bit nicer, but you get the picture.)
I’m sorry it has to be a fight, but I found that to kind of be a harsh reality since I got sickly/disabled. We have the law on our side, but sometimes we have to remind people of that. Best of luck!
When my meds cause drowsiness…
Thanks for the submit, detailsitfabric! This is completely accurate! haha
What it’s like with restless legs syndrome…
Thanks for the submit, ech0tang0! I don’t even care that this gif will now be used three times in this blog. It’s my favorite thing ever. haha
Q:Idk if it counts as a chronic illness but my anxiety has gotten so bad that I have near daily attacks and I can't make any decisions without panicking, even simple ones
I’m not one to decide what labels go where. I leave it up to how people feel about their symptoms and what they label them as. :0) So in my mind, anxiety could definitely be a chronic illness…and it could also not be depending on the person. For me, it’s definitely a part of the whole chronic illness experience.
But either way, anxiety is the pitts. In high school I was near paralyzed with anxiety and I’m really glad and lucky that it got better as I got older (and medicated hehe). I’m sorry it’s so rough for you right now. I’m working through some nighttime panic attacks myself and it’s quite a beast to deal with. Here’s to someday things getting better for us in that department!
Q:Does it really hurt when you get hiccups? it always jars my ribs so much, also I really like your blog :)
OMG yes! Someday I’ll have to upload a video on here of me having the hiccups because it’s quite the spectacle. Ever since my stroke I have these HUGE hiccups that make my whole body jerk and are REALLY loud. Like if once my friend could hear me from inside a restaurant bathroom when she was out at out table. If they have to hurt so much, at least they are flipping hilarious!